Going away to college can be both an exciting and scary time for young adults, including those with congenital heart disease (CHD). This article is designed to help incoming college students with CHD navigate this new chapter in life and learn how to take charge of their own healthcare.
After being [...]
After a baby is diagnosed with hypoplastic left heart syndrome (HLHS), there are many things to consider. The following list of questions may help you prepare for visits with your health care team (e.g., obstetrician, pediatric cardiologist, cardiovascular surgeon, neonatologist).
These questions are a guide; some may not apply to your [...]
Hypoplastic left heart syndrome (HLHS) is a complex congenital heart defect in which the left side of the heart is severely underdeveloped. The care for patients with HLHS is complicated and requires multiple surgeries in infancy and sometimes into adulthood. Studies have consistently confirmed that when an institution performs high [...]
Research volunteers play a key role in enabling researchers in the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic and HLHS Consortium to reach their goal of finding solutions for individuals with HLHS and CHD.Umbilical cord blood collection
By collecting and banking your baby's umbilical cord blood [...]