Resources

Sisters by Heart: Raising a Toddler Sister by Heart: The Single Ventricle Journey: A Guide for Parents and Families Listen to Cause2Cure with Tim Nelson, MD, PhD Ava the Superhero's Interview on Mayo Clinic Radio Gabrielle Wanek's Advice for CHD Families: Trust Your Kids! Pioneering Patient Perspective with Gene Lunger Greg Olsen: Find Your Role

By callahuxtable • February 27, 2020

Sister by Heart: Coping During Interstage Sister by Heart: The Single Ventricle Journey: A Guide for Parents and Families Phase I Stem Cell Trial Results Listen to Cause2Cure with Tim Nelson, MD, PhD Tim's Interpretation of "Where Focus Goes, Energy Flows" Cardiology 2020: Regenerative Medicine for Congenital Heart Disease Greg Olsen: Find Your Role

By callahuxtable • February 27, 2020

Sister by Heart: The Single Ventricle Journey: A Guide for Parents and Families Questions After Diagnosis FAQs on Umbilical Cord Blood Collection A Guide to Collecting Umbilical Cord Blood for Cardiac Use Listen to Cause2Cure with Tim Nelson, MD, PhD Umbilical Cord Blood Collection 101 with Staci Strand Ava the Superhero's Interview [...]

By callahuxtable • February 27, 2020

Questions for the Cardiologist of the Patient with a Fontan Tips on Preparing for College When You Have CHD Sister by Heart: The Single Ventricle Journey: A Guide for Parents and Families Listen to Cause2Cure with Tim Nelson, MD, PhD Beats for Bella Part 1: Meg (Roswick) Didier on College, Marriage and Starting [...]

By callahuxtable • February 19, 2020

What is HLHS?: A Child's Perspective Sisters by Heart: HLHS Book of Hope Sisters by Heart: Confronting Prenatal Diagnosis Sister by Heart: The Single Ventricle Journey: A Guide for Parents and Families Questions After Diagnosis Dr. James Jaggers, Chief of Congenital Cardiac Surgery at Children's Hospital Colorado, discusses HLHS Treatment Options, Outcomes, [...]

By callahuxtable • February 18, 2020

Going away to college can be both an exciting and scary time for young adults, including those with congenital heart disease (CHD). This article is designed to help incoming college students with CHD navigate this new chapter in life and learn how to take charge of their own healthcare. After being [...]

By callahuxtable • January 23, 2020

After a baby is diagnosed with hypoplastic left heart syndrome (HLHS), there are many things to consider. The following list of questions may help you prepare for visits with your health care team (e.g., obstetrician, pediatric cardiologist, cardiovascular surgeon, neonatologist). These questions are a guide; some may not apply to your [...]

By callahuxtable • January 7, 2020

What is HLHS? Questions After Diagnosis Sisters by Heart: HLHS Book of Hope How to Choose the Right Hospital for Your Heart Warrior Dr. James Jaggers, Chief of Congenital Cardiac Surgery at Children's Hospital Colorado discusses HLHS Treatment Options, Outcomes, Follow-up Care and Research Cause2Cure Podcast: Umbilical Cord Blood Collection 101 with Staci Strand [...]

By callahuxtable • January 7, 2020

Hypoplastic left heart syndrome (HLHS) is a complex congenital heart defect in which the left side of the heart is severely underdeveloped. The care for patients with HLHS is complicated and requires multiple surgeries in infancy and sometimes into adulthood. Studies have consistently confirmed that when an institution performs high [...]

By callahuxtable • January 7, 2020

We get a lot of questions about banking umbilical cord blood (UCB).  Below, we answer some frequently asked questions on the different options that are available.  If you’d like more information on UCB, why it’s collected, and stem cells, you can read our blog post from September 2016. Q.  What are the options [...]

By callahuxtable • January 6, 2020